Rachel Richesson, PhD, Associate Professor in the Duke School of Nursing, together with James Andrews, PhD, University of South Florida are co-editors of the second edition of Clinical Research Informatics recently published by Springer International Publishing. The edition reviews how clinical research informatics has evolved and the challenges in a constantly evolving clinical research environment. The book includes two chapters co-authored by other Duke faculty: James Tcheng, MD, Professor of Medicine/Cardiology (Patient Registries for Clinical Research) and W. Ed Hammond, PhD, Professor of Community and Family Medicine (Developing and Promoting Data Standards for Clinical Research).
This year, Duke was well represented at the AMIA 2019 Informatics Summit with over thirty faculty, staff and students from the University, Health System, School of Medicine, Duke Clinical Research Institute, Duke Health and Technology Solutions and Duke Forge.
Scientific Program Committee
Davera Gabriel, RN, Senior Informaticist at Duke Clinical Research Institute, Vice Chair, Data Science Track
Benjamin Goldstein, PhD School of Medicine, Data Science Scientific Program Committee
Julian C. Hong, MD, MS, Duke University, Clinical Research Informatics Scientific Program Committee
Davera Gabriel, RN – 3D Data
Special, late-breaking AMIA Summit SPC Chair Alumni Supersession
Dr. Jessie Tenenbaum, PhD Assistant Professor, Duke Translational Medicine Institute; TBI, 2013
Dr. Jessie Tenenbaum, PhD Assistant Professor
S32: Panel – Mental health research in the open science era: special issues in sharing sensitive behavioral health data
Scientific Papers, Podium Presentations
Allison Dunning, Senior Biostatistician at Duke Clinical Research Institute
Board 10 – An Interactive Data Visualization Tool Developed from Deep Learning Implementation to Electronic Health Record Notes
Note coauthors: Qi Liu, Duke University, Azalea Kim, Duke Forge, Julie Childers, Duke University Health System, Shelley Rusincovitch, Duke Forge, Ursula Rogers, Duke Forge, Ricardo Henao, Duke University
Andy MacKelfresh, Project Leader at Duke Clinical Research Institute
Surgical Critical Care Initiative: Multi-Site Data Collection, Harmonization, and Analytics to Generate Clinical Decision Support Tools
Matthew Phelan, Biostatistician at Duke Clinical Research Institute
Mitigating Bias Due to Informative Visit Process in Electronic Health Records Data
Note coauthors: Sarah Peskoe, Duke University, Neha Pagidipati, DCRI, Benjamin Goldstein, Duke Clinical Research Institute
Laura Qualls, Project Leader at Duke Clinical Research Institute
Evaluating Foundational Data Quality and Fitness for Use in the National Patient-Centered Clinical Research Network (PCORnet®)
Note coauthors: Sujung Choi, Duke Clinical Research Institute, Allison Haufler, Duke Clinical Research Institute, Darcy Louzao, Duke Clinical Research Institute, Stephanie Poley, Duke Clinical Research Institute, Keith Marsolo, Cincinnati Children’s Hospital (now Duke University)
Prof. Ryan Shaw, Associate Professor at Duke University
Diabetes Mobile Care: Aggregating and Visualizing Data from Multiple Mobile Health Technologies
Note coauthors: Eleanor Wood, Duke University, Qing Yang, Duke University, Dori Steinberg, Duke University, Angel Barnes, Duke University, Jacqueline Vaughn, Duke University, Matthew Crowley, Duke University, Craig Henriquez, Duke University, Martin Streicher, Duke University, Daniel Bass Blue, Duke University, Susie Choi, Duke University
Dr. Azalea Kim, MD, MBA, MPA, Medical Director, Applied Health Data Science at Duke University
Finding Needles in the EHR Haystack: Design and Early Results for a Natural Language Processing Model to Identify Clinical Notes Relevant to a Patient’s Goals of Care
Note coauthors: Allison Dunning, Duke University, Shelley Rusincovitch, Duke University, Andrew Olson, Duke University, Julie Childers, Duke University Health System, Erich Huang, Duke University, Ursula Rogers, Duke University, Brian Griffith, Duke University Health System, Lawrence Mumm, Duke University Health System, Qi Liu, Duke University, Matias Benitez, Duke University, Jared Lowe, Duke University Health System, Ricardo Henao, Duke University, David Casarett, Duke University Health System
Debra Harris, Assoc Dir, HSR at Duke University – Duke Clinical Research Institute
From Encounters to Endpoint: Method of Developing Clinical Trial Endpoint Dataset from EHR, Claims, and Patient-Reported Events
Note co-authors: Bradley Hammill, Duke University, Lisa Eskenazi, Duke University, Mary Williams, Duke University, W. Jones, Duke University , Jennifer White, Duke University, Holly Robertson, Duke University
Bilikis Akindele, Team Lead Clinical Research Informatics/Analytics at DUHS
Monitoring the Monitors: Data-Driven Alarm Management Strategies for Clinical Devices at Duke Health
Note co-author: Tracey Hughes, Duke University Health System
Nrupen Bhavsar, Assistant Professor at Duke University School of Medicine
Is the health of a neighborhood improving or are healthier people displacing long term residents: – a case study of gentrification in Durham County
Note co-authors: Matthew Phelan, Duke Clinical Research Institute, Megan Sheperd-banigan, Duke University School of Medicine,Joseph Lunyera, Duke University School of Medicine, Benjamin Goldstein, Duke University School of Medicine,Clarissa Diamantidis, Duke University School of Medicine, Ebony Boulware, Duke University School of Medicine
Bilikis Akindele, Team Lead Clinical Research Informatics/Analytics at Duke University Health Systems
Board 01 – Towards reproducibility and quality in EHR-enabled data science – Methods and Strategy
Note coauthors: Bhargav Adagarla, Duke Clinical Research Institute, Brian McCourt, Duke Clinical Research Institute, Matthew Harker, Duke University Health System
Ursula Rogers, Senior Informaticist at Duke University School of Medicine
Board 40 – Data Management Considerations using Electronic Health Record (EHR) Clinical Notes
Note coauthors: Shelley Rusincovitch, Duke University, Allison Dunning, Duke Clinical Research Institute, Ryan Craig, Duke Health Technology Systems
Zhecheng Sheng, Duke University School of Medicine
Board 42 – Analyzing the association of time-varying vital signs with in-hospital mortality & ICU transfer.
Note co-authors: Armando Bedoya, School of Medicine, Duke University, Cara O’Brien, School of Medicine, Duke University, Sheng Luo, School of Medicine, Duke University, Benjamin Goldstein, School of Medicine, Duke University
Zidi Xiu, Duke University
Board 51 – Adversarial Learning in Time-to-Event Prediction
Note coauthors: Yue Liang, Duke University, Cara O’Brien, Duke University, Armando Bedoya, Duke University, Benjamin Goldstein, Duke University, Ricardo Henao, Duke University
Zhong Huang , Duke University
Board 18 – Constructing Clinical Profiles of Rare Diseases Through Latent Dirichlet Allocation
Note co-authors: Nishant Iyengar, Duke University, James Moody, Duke University, Rachel Richesson, Duke University School of Nursing
Lisa Eskenazi, MHA Clinical Data Operations Manager at Duke Clinical Research Institute
Board 12 – I’ve Got a Golden Ticket! How the ADAPTABLE Study Uses Invitation Codes as a Gateway for Patients to Enroll Through the ADAPTABLE Patient Portal.
Note coauthors: William S. Jones, Duke Clinical Research Institute, Bradley G. Hammill, Dr PH Duke Clinical Research Institute, Debra F. Harris, Duke Clinical Research Institute, Holly R. Robertson, PhD Duke Clinical Research Institute, Shelley Rusincovitch, MMCi Duke Forge
Yue Liang, Student at Duke University
Board 24 – Predictive Performance of Deep Learning Models using Longitudinal Electronic Health Records Data
Note coauthors: Zidi Xiu, Duke University , Cara O’Brien, Duke University, Armando Bedoya, Duke University, Ricardo Henao, Duke University, Benjamin Goldstein,PhD Duke University
W. Ed Hammond, PhD, Director of the Duke Center for Health Informatics, was asked to be the Chairperson of the 2019 National Healthcare Informatics Summit held in Pasadena, CA, March 18-19, 2019. This two day event focused on problems and solutions to the most critical issues facing the leaders of the nation’s healthcare organizations. Representatives from hospitals and healthcare systems around the country were present to share, listen, learn and collaborate on solutions to the healthcare industries most pressing concerns. Dr. Hammond’s presentation was entitled, “Make the Future.”
Ryan Shaw, PhD, RN, Associate Professor at Duke’s School of Nursing will collaborate with researchers from the University of Wisconsin on an RO1 NIH/NIDDK funded grant that will continue previous research using mobile technology to achieve and maintain long-term weight loss . For the complete story, click here.
AMIA 10×10 Data Standards for Learning Health Systems
January 22, 2019 — March 27, 2019 – now enrolling!
This course will explore the concept of learning health systems and closely examine the specific data standards required to support data exchange and re-use in this context. Learners will appreciate the heterogeneity and complexity of existing standards and identify opportunities to use them in organizational and research activities, including observational studies, pragmatic trials and quality improvement projects. Standards Development Organizations and processes for developing and defining standards will be discussed. Specific topics covered will include tools related to the planning phases for health information systems, as well as standards that support interoperability, including information models, terminology and coding systems, data transport syntax, and structured documents. The development, functionality, uptake, and usability of standards from national and international perspectives are discussed, along with models for continuous use of clinical data for quality improvement and research. Students will have an opportunity to define a clinical question and various standards that support the application and evaluation of evidence in health care settings.
Topics: Identifying and evaluating standards, understanding interactions between standards, terminologies and coding systems (SNOMED CT, ICD, CPT, LOINC, RxNorm, ICNP), data exchange standards (HL7 v2, v3, FHIR), HL7 CDA, standards for quality measurement and clinical decision support (HQMF, QDM, CQL, CDS Hooks), and common data models.
Rachel Richesson, PhD, MPH, FACMI
Associate Professor, Division of Clinical Systems & Analytics
Duke University School of Nursing
Associate Director for Research
Duke Center for Health Informatics
Logistics: Online & on-demand. Weekly videos, assignments, and online discussions. Optional live discussion via web-ex & face-to-face meeting at AMIA Informatics Summit on March 24, 2019 in San Francisco.
Tuition: $2,395 (discounted pricing for groups of 5 or more.) 49.5 AMA PRA Category 1 Credit(s)™
AMIA’s 10×10 program uses content from partnering certified informatics training programs and other AMIA educational initiatives.
These courses are ideal for those looking to advance their health care profession with informatics training.
For more information and to register: https://www.amia.org/amia10x10/duke
Congratulations new fellows! They will be inducted into the American College of Medical Informatics on November 4 at ceremonies during the AMIA 2018 Annual Symposium.
2018 Duke Fellows:
Ryan Shaw, PhD, RN, the Elizabeth C. Clipp Term Chair of Nursing has been awarded a three-year grant from the National Science Foundation titled, “Customizing Semi-Autonomous Nursing Robots using Human Expertise.” The award is for $962,572 over a three-year period. Read more.
July 30 through August 1, DCHI provided a Short Course for 24 employees of the Inter-American Development Bank, the main source of multilateral financing in Latin America. They provide solutions to development challenges and support in the key areas of the region. Fourteen countries in the Caribbean and Latin America were represented. The purpose of the course was to give participants a broad overview of the history of healthcare, current trends and the process of converting from paper to electronic health systems.
Duke particpants included: Iain Sanderson, BM, BCh (Director, Biomedical Informatics Core); Rachel Richesson, PhD (Associate Professor, Duke School of Nursing); Eric Eisenstein, DBP (Associate Professor, Duke School of Medicine); Genie McPeek-Hinz, MD (Associate Chief Health Information Officer, Duke University Health System); Eric Poon, MD (Chief Health Information Officer, Duke Medicine); Jimmy Tcheng, MD (Chief Medical Information Officer, Duke Heart Network); Ed Hammond, PhD (Director, Duke Center for Health Informatics; and Vivian West, PhD (Associate Director, Duke Center for Health Informatics). The Short Course was held at JB Duke Hotel and Conference Center in Durham, NC.
Ed Hammond, PhD, FACMI, FAIMBE, FIMIA, FHL7, FIAHSI and Amy Nordo, MMCi, BSN, CPHQ traveled to DC to provide an update on the eSource collaboration project between the FDA, CDISC, Industry and Research Sites. As well as, additional initiatives unique to Duke that impact clinical research and clinical care.
In March, 2018 Ed Hammond, PhD, FACMI, FAIMBE, FIMIA, FHL7, FIAHSI and Amy Nordo, MMCi, BSN, CPHQ hosted a team from Pfizer to progress their partnership in the eSource collaboration project between the FDA, CDISC, Industry and Research Sites. During their visit, they enjoyed a tour of the Innovation Studio, a brainstorming session with the Duke Clinical Research Institutes (DCRI) and a discussion with Matthew Harker, Director of the Analytics Center of Excellence (ACE) Research Customer Solutions at Duke University Health System.