Informatics Research Seminar: The RISE Registry– How Compiling Clinical Data Might Improve Medical Care

Speaker: Megan Clowse, MD
Presented from Duke University

Broadcast Link: Seminar

At Duke, all seminars live or broadcast will be held in Hock Auditorium from 4-5 pm.

Abstract:

In this seminar we will discuss the American College of Rheumatology’s RISE Registry, a registry of electronic medical record data pulled directly from clinical visits.  In just a few years, this Registry has pulled together larger datasets than ever seen in Rheumatology, but is the data useful and can it improve care?

Biosketch:

Megan E.B. Clowse, MD, MPH
Associate Professor, Department of Medicine, Division of Rheumatology & Immunology, Duke School of Medicine.   Associate Director, Duke Forge.  Director, Duke/DCRI RISE Data Analytic Center. Director, Duke Autoimmunity in Pregnancy Registry
Dr. Clowse is a rheumatologist with a clinical and research interest in reproductive health.  Since she began her fellowship at Johns Hopkins Hospital in 2002, she has pursued clinical research that would identify the optimal management approaches for rheumatic diseases, including lupus and rheumatoid arthritis, during pregnancy.  As the Director of the Duke Autoimmunity in Pregnancy Registry, she has cared for and studied over 450 pregnancies in women with rheumatic disease over the last decade.  She is now an international leader in Reproductive Rheumatology, speaking to rheumatologists and obstetricians world-wide about improvements in management.  In this role, she was the primary organizer for the 9th International Conference on Pregnancy, Reproduction, and Rheumatology in San Diego in 2016.  She is currently a member of the Core Leadership team for the development of the inaugural Reproductive Health Guidelines for the American College of Rheumatology.

Dr. Clowse earned her Master’s in Public Health, with an emphasis on Population and Family Health, from the University of California, Los Angeles, and her medical degree from Vanderbilt Medical School.  She completed her Internal Medicine residency and Rheumatology fellowship at Johns Hopkins Hospital before joining the Duke faculty in 2005.

Dr. Clowse is now the Associate Director of Duke Forge, bringing her clinical and clinical research expertise to this data-analytics team.  She is also the Director of the Duke/DCRI RISE Data Analytics Center and a long-term member of the American College of Rheumatology’s Research and Publications Committee.

Informatics Research Seminar: Health Information System Improvement in Low-and-Middle Income Countries

Speaker: Manish Kumar, MPH, MS
Presented from UNC-CH

Broadcast Link: Seminar

At Duke, all seminars live or broadcast will be held in Hock Auditorium from 4-5 pm.

Abstract:

While there has been a growing emphasis on Health Information Systems (HIS) strengthening and measuring how they contributes to improved health outcomes, there is limited understanding of factors affecting HIS improvement at different stages of its development. The Monitoring and Evaluation to Assess and Use Results (MEASURE) Evaluation Phase IV is a USAID-funded five-year (2014-2019) project. MEASURE Evaluation’s mission is to contribute to better health for people living in low-income countries by assisting governments and health institutions to generate and use information to change what doesn’t work and to scale up what does. This seminar will review the five stages of improvement together with associated domains/sub-domains and discuss attributes defining  HIS improvement at different stages of HIS development.

Biosketch:

Manish Kumar, MPH, MS, is the Senior Technical Specialist for Health Systems Strengthening in the MEASURE evaluation Project at the University of North Carolina. His work focuses on providing technical and capacity-building support for implementation of the Data for Accountability, Transparency and Impact Monitoring (DATIM) System of PEPFAR in more than 50 developing countries. He is currently also a PhD student in the Carolina Health Informatics Program at the University of North Carolina at Chapel Hill. He is a member of the Digital Health and Interoperability working group of the Health Data Collaborative, an inclusive partnership of international agencies, governments, philanthropies, donors and academics, with the common aim of improving health data.

Informatics Research Seminar: CANCELLED

THIS EVENT IS CANCELLED DUE TO INCLEMENT WEATHER

Speaker: Ed Hammond, PhD, FACMI, FAIMBE, FIMIA, FHL7
Presented from Duke University

Broadcast Link: Seminar

At Duke, all seminars live or broadcast will be held in Hock Auditorium from 4-5 pm.

Abstract:

Evolution has always been driven by change but mainly at a snail’s pace.  The difference now is that change is occurring at an exponential pace.  Almost anything and everything that relates to healthcare is changing. Many of these changes relate to new and developing technologies; to new roles for the stakeholders involved in the delivery of health care; to the delivery of care in new settings; to changing and aging populations; to shifts in responsibilities.  Pick your time frame – from 2020 to 2050 –health care as we know it will change.  Patients will play an increasingly important role in taking responsibility of their own health and decision-making, with delivery of care at the site of the individual.  This seminar will challenge the status quo of today.

Biosketch:

Ed Hammond, PhD, is a Professor in Community and Family Medicine and the Director of Duke Center for Health Informatics (DCHI), part of the Clinical and Translation Sciences Institute (CTSI).  Dr. Hammond has been engaged in health informatics research and practice for the past fifty years. His experience in design and implementation of electronic health records, standards development and implementation, creating data elements with rich attribute sets across domains, clinical decision support, and enabling interoperability across heterogeneous groups has provided him a plethora of valued knowledge and experience. As a leader in such organizations as Health Level 7 (HL7), the American Medical Informatics Association (AMIA), the International Organization for Standardization (ISO) and the eHealth Initiative, Dr. Hammond has been instrumental to the growth in the field of Health Informatics.

The Informatics Research Seminar Series is sponsored by Duke University and a collaboration with UNC-Chapel Hill, NCCU, UNC-Charlotte, and ECU. This series explores key areas in Health Informatics and include research results, overview of programs of research, basic, applied, and evaluative projects, as well as research from varied epistemological stances.

Informatics Research Seminar: Machine Learning: For Robust and Redefined Data-Driven Decision Making

Speaker: Michael Kosorok, PhD
Presented from UNC-CH

Broadcast Link: Seminar

The Informatics Research Seminar Series is sponsored by Duke University and a collaboration with UNC-Chapel Hill, NCCU, UNC-Charlotte, and ECU. This series explores key areas in Health Informatics and include research results, overview of programs of research, basic, applied, and evaluative projects, as well as research from varied epistemological stances.

 Abstract: 
An overview of how data science and big data have become relevant to biomedical research will be presented, including the roles of machine learning and statistics in data-driven decision making and precision medicine and the potential pitfalls of “big data hubris.” Several ongoing projects using machine learning for precision medicine will be described, including work on patient-derived xenograft mouse models for cancer, type 1 diabetes, and alcohol dependency. Sequential multiple assignment randomized trials (SMARTs) for precision medicine research will also be introduced.

Biosketch:,
Michael R. Kosorok, PhD, MS is the W.R. Kenan, Jr. Distinguished Professor and Chair of Biostatistics, Professor of Statistics and Operations Research, and Member of the Lineberger Comprehensive Cancer Center at the University of North Carolina at Chapel Hill. His research interests are in biostatistics, data science, machine learning, and precision medicine. He has authored over 130 peer-reviewed journal publications and two books, one on the theoretical foundations of biostatistics (Introduction to Empirical Processes and Semiparametric Inference, 2008, Springer) and one, co-authored with Erica E.M. Moodie, on current data science methods in precision medicine (Adaptive Treatment Strategies in Practice: Planning Trials and Analyzing Data for Personalized Medicine, 2016, ASA-SIAM). He is an honorary fellow of the American Statistical Association, the Institute of Mathematical Statistics, and the American Association for the Advancement of Science.

For a complete seminar schedule, visit the DCHI website:

http://dukeinformatics.org/education/informatics-seminars/

 

CEU Credit:

In support of improving patient care, the Duke University Health System Department of Clinical Education and Professional Development is accredited by the American Nurses Credentialing Center (ANCC), the Accreditation Council for Pharmacy Education (ACPE), and the Accreditation Council for Continuing Medical Education (ACCME), to provide continuing education for the health care team.

Duke University Health System Department of Clinical Education and Professional Development designates this live activity for 1 Credit.

Locations:          

Duke:  Hock Auditorium – Hock Plaza 2424 Erwin Road, Durham, NC 27705
UNC-Chapel Hill:  Health Science Library, Room 227
NCCU-Durham:  Room 364, James E. Shepard Memorial Library
UNC-Charlotte:  Fretwell 126
ECU-Greenville:  Health Sciences Building, Room 1355

Parking at Duke:

A printed, bar coded parking pass is required for entry to and exit from the garage. Parking passes must be requested at least 48 hours in advance of the seminar.  Email healthinformatics@duke.edu  to request a parking pass. The pass will be emailed to you in PDF format and must be printed for scanning at the gate. The system will not scan bar codes from smartphones.

After parking, proceed to the 4th Floor of the parking garage and exit across the driveway to enter the building lobby.  Sign in at the desk; take the elevator down to the ground floor to Hock Auditorium.  (Exit left off the elevator and walk down the hall, the auditorium will be on your right.)

Questions: healthinformatics@duke.edu

 

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