February 15 @ 4:00 – 5:00 pm
Speaker: Myra A. Carpenter & Hope Bryan
Presented from UNC-CH
Broadcast Link: Seminar
The Collaborative Studies Coordinating Center at the University of North Carolina has been developing data management solutions for health research since 1971. From the paper-based systems used in the Lipids Research Clinics Program that first demonstrated that lowering blood cholesterol would reduce incident coronary heart disease to current studies using web-based computer-assisted data capture, countless data management issues have been broached and resolved. This presentation highlights some of the informatics solutions in use today, as well as providing an historical perspective of how data management solutions have evolved over the past 40 years. Applications for both longitudinal observational studies and clinical trials will be described, including systems for radiographic image archival and review, clinical alerts, and linkage with electronic medical records.
Myra Carpenter is a senior investigator at the Collaborative Studies Coordinating Center, where she has been directing collaborative research projects for 24 years. As principal investigator of the data coordinating centers for multiple studies, she draws on her study design and data management expertise to identify the best fit between project and system implementation, and to identify areas in which informatics solutions are needed.
Hope Bryan is the director of data management at the Collaborative Studies Coordinating Center. She has been involved in the design and implementation of data management solutions for many of the challenges presented by research projects with complex study designs.