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Informatics Research Seminar: Enhancing Survivorship Care Planning for Patients with Localized Prostate Cancer using a Couple-focused Mhealth Tailored Symptom Self-management Program.
October 10, 2018 @ 4:00 pm - 5:00 pm EDT
Speaker: Lixin Song, PhD
Presented from UNC-CH
Broadcast Link: Seminar (There is content, click play button on the bottom left)
A key component of comprehensive survivorship care planning is survivorship care plans (SCPs), documents that summarize cancer diagnosis, treatment, and plans for follow-up care. However, research concerning the effectiveness of survivorship care plans (SCPs) on patient outcomes or health service use has thus far been inconclusive. SCPs that are tailored to individual patients’ needs for information and care may improve effectiveness. In this NCI-funded pilot randomized clinical trial, we examine the feasibility of an Enhanced Survivorship Care Plan (ESCP) that integrates a symptom self-management mHealth program called Prostate Cancer Education and Resources for Couples (PERC) into the existing standardized SCP. Prostate cancer is the most prevalent type of cancer in men in the U.S. (excluding skin cancer); men with prostate cancer frequently experience treatment-related side effects and symptoms, which reduce the quality of life for both men and their partners. The results from this study will help design a definitive randomized trial to test the efficacy of the ESCPs, a potentially scalable program, to enhance supportive care for prostate cancer patients and their families. Our findings will also help explore a new model of care that enhances survivorship care planning and promotes health for cancer survivors who transition from active treatment to post-treatment self-management.
Dr. Lixin Song is an Associate Professor and Beerstecher-Blackwell Distinguished Term Scholar at the UNC School of Nursing and Adjunct Associate Professor at the UNC School of Medicine. Dr. Song received her PhD in nursing from the University of Michigan-Ann Arbor. Her research focuses on improving symptom management and quality of life among cancer survivors and their family caregivers. Dr. Song and her team have developed innovative mhealth programs to support cancer patients during care transition from active treatment to post-treatment self/family-care at home. Dr. Song is currently working on two ongoing projects that are funded by NCI (R21) and NINR (R01).