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Informatics Research Seminar: Clinical Data Research Networks – Leveraging the Value of EHRs
January 11, 2017 @ 4:00 pm - 5:00 pm EST
Speaker: Janis Curtis, MSPH, MA
Presented from Duke University
Broadcast Link: SEMINAR
Many clinical trials require analysis of clinical data for large number of study participants. The traditional way of identifying cohorts and collecting clinical data for large number of study participants is untenable. The use of EHR systems in most health care delivery organizations in the United States has resulted in a plethora of electronic clinical data. Consequently, this is a tremendous benefit to researchers and significantly aids various types of research, including but not limited to health services research and clinical trials. Health care providers are forming networks called “clinical data research networks” to pool their EHR data in a federated manner to support research efforts, research that is essential in the evolving value-based payment environment. This presentation will describe what a clinical data research network (CDRN) is, identify the benefits of CDRNs for research, review the CDRNs in which Duke Health is currently a member, and include a demo of i2b2 and SHRINE, two of the CDRN data query tools used at Duke.
Janis L. Curtis, MSPH, MA, is the Associate Director of Clinical Data Research Networks (CDRNs) in the Office of Research Informatics at Duke Health. Ms. Curtis has responsibility for establishing and managing the technical infrastructure and processes at Duke needed to respond to requests for clinical data and/or for recruitment of co-investigators and study participants is support of clinical research. She is a long-time Duke employee and has held a variety of senior IT management and leadership positions including Business Relationship Management Executive for Outpatient Services and Associate CIO for Entity Support where she was responsible for IT operations at Duke Regional Hospital, Duke Raleigh Hospital, Duke Home Care and Hospice, and the Duke Primary Care. As Duke’s representative, Ms. Curtis has served on several State of North Carolina committees related to HIE governance, development of HIT Strategic Plan, etc. Prior to joining the Duke executive management team, she was the Deputy Commissioner and Executive Director for the NC Medical Database Commission. She currently serves as Chair of the Health Information Management Systems Society (HIMSS) Davies Enterprise Committee and as a member of the HIMSS Analytics Advisory Board. She has served on the North Carolina Healthcare Information and Communications Alliance (NCHICA) Board of Directors and on several NCHICA Committees. In 2013, she received the HIMSS John A Page Outstanding Service Award. Ms. Curtis received her MSPH with concentration in health policy and management from the Harvard School of Public Health and her MA in Liberal Studies from Duke University.