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Informatics Research Seminar: Carolina Data Warehouse for Health
January 18 @ 4:00 pm - 5:00 pm UTC+0
Speaker: Emily Pfaff, MSIS
Presented from UNC-CH
Broadcast Link: SEMINAR
The Informatics Research Seminar Series is sponsored by Duke University and a collaboration with UNC-Chapel Hill, NCCU, UNC-Charlotte, and ECU. This series explores key areas in Health Informatics and include research results, overview of programs of research, basic, applied, and evaluative projects, as well as research from varied epistemological stances.
Seminar: Untangling Data-Driven Clinical Research: Technical and Governance Considerations
Completing a successful data-driven clinical research study must account for the fact that healthcare data is plentiful, complex, and often messy. While this will likely always be true, thoughtful data modeling and data warehousing techniques can help untangle healthcare data and enable clinical discovery. Moreover, the advent of “common” data models in the field of clinical informatics enables such research to incorporate data not only from the investigator’s home institution, but from multiple healthcare institutions across the country. However, as data-driven clinical research studies increase in number and scope, it is also essential to look beyond technical concerns to consider regulatory, governance, and patient engagement as factors in the overall success of the field.
Emily. Pfaff, MIS, is the Administrative Director for Informatics and Data Science for the NC TraCS Institute. She holds a Master’s in Information Science, a graduate certificate in clinical informatics, and three Epic certifications (Clarity Inpatient, Research: Clinical Tools, and Research: Billing). She has expertise in healthcare data structures, SQL, data warehousing, electronic health records, clinical data research networks, data security, and HIPAA and other data regulations. Ms. Pfaff currently oversees data analytics, research data management, and web development for the CTSA, and is heavily involved with data security, data sharing, and data governance efforts within the university, the UNC Health Care System, and across institutions. Through public presentations and teaching graduate courses, she also serves as an “informatics ambassador” to the UNC campus (faculty and students), as well as TraCS partners and collaborators.